Pharmaceuticals
10 patient advocacy relations experts
These ten professionals have held patient advocacy leadership roles at pharmaceutical and biotech companies. A reader can learn how drug companies build relationships with patient advocacy organizations and bring patient perspectives into their work.
Professionals to explore
01—10Amanda Seeff-Charny
LinkedInExperience: Executive Director, Patient Advocacy · Regeneron
Executive Director, Patient Advocacy at Regeneron since 2021 and former Senior Director, Patient Advocacy there (2017–2021). The profile describes experience establishing Patient Advocacy/Professional Relations functions and setting strategy for relationship development with non-profits, patient advocacy groups and professional societies; it also lists Deputy Director, Advocacy at Bayer (2016–2017).
Del M. Conyers, MPH
LinkedInExperience: Director of Patient Advocacy Relations · Genentech
Director of Patient Advocacy Relations at Genentech since 2025, where the profile says this person drives advocacy engagement across respiratory, immunology and food allergy and leads patient advocacy strategy aimed at making the patient voice shape decisions on access, care and outcomes. Former Director of Patient Advocacy & Engagement US Specialty at GSK (2022–2025).
Juliette Fry, MPH
LinkedInExperience: Director, Patient Advocacy · Syndax Pharmaceuticals
Director, Patient Advocacy at Syndax Pharmaceuticals since 2025, where the profile says the role ensures the patient perspective is embedded across the company's prioritized therapeutic areas, including cancer and other serious diseases, with a focus on building new relationships. Former Associate Director, Advocacy Relations at Sumitomo Pharma America, Inc. (2023–2024).
Kathryn Mathias
LinkedInExperience: Director, Patient Advocacy and Strategic Partnerships · Takeda
Director, Patient Advocacy and Strategic Partnerships at Takeda since 2025, a role the profile says is responsible for driving engagement with priority national advocacy organizations aligned with Takeda's interests. Former Assoc. Director Launch Excellence, Therapeutic Policy and Advocacy (2022–2025) and Assoc. Director Public Affairs & Operations (2019–2022) at Takeda.
Kristin N. Voorhees, MA
LinkedInExperience: Senior Director, Patient Advocacy · Ultragenyx
Senior Director, Patient Advocacy at Ultragenyx since 2024; at Ultragenyx the profile also lists Director, Patient Advocacy (2021–2024), Associate Director, Patient Advocacy (2020–2021) and Senior Manager, Patient Advocacy (2017–2020). The profile describes championing initiatives that elevate patient voices and embed their perspectives into organizational strategy and decision-making.
Margaret Alabi
LinkedInExperience: Director, US & Global Patient Advocacy · Regeneron
Director, US & Global Patient Advocacy at Regeneron since 2023, where the profile says this person leads the development and execution of US and Global Dermatology patient advocacy strategy across the drug discovery and commercialization continuum. Former US Patient Advocacy Lead at UCB (2020–2023).
Rachel Mack Radomski
LinkedInExperience: Executive Director, Patient Advocacy and Engagement · Harmony Biosciences
Executive Director, Patient Advocacy and Engagement at Harmony Biosciences since 2023. At Harmony Biosciences the profile also lists Senior Director, Patient Advocacy (2021–2023) and Director, Patient Advocacy (2019–2021), and it lists Associate Director, Patient Advocacy at Vertex Pharmaceuticals (2016–2019).
Regan Sherman
LinkedInExperience: Executive Director, Patient Advocacy · Astria Therapeutics, Inc.
Executive Director, Patient Advocacy at Astria Therapeutics, Inc. since 2024. Former Senior Director & Head, Patient Advocacy at Entrada Therapeutics (2021–2024), Director & Head, Patient Advocacy Relations at Orphazyme A/S (2018–2021) and Associate Director, Rare Diseases Patient Advocacy at Sanofi (2015–2018); the profile describes working with patient and professional advocacy organizations.
Tricia Oppelt
LinkedInExperience: Director, Global Patient Advocacy · Alexion Pharmaceuticals, Inc.
Former Director, Global Patient Advocacy at Alexion Pharmaceuticals, Inc. (2019–2026) and Director, Patient Advocacy at Catalyst Pharmaceuticals, Inc. since 2026. The profile describes developing collaborative relationships with consumers, advocacy organizations, community stakeholders and internal team; it also lists Associate Director, Patient Services at Sanofi (2019).
Virginie Delwart
LinkedInExperience: Director Patient Advocacy - Hematology, Oncology, Gene Therapy (CRISPR) Rare Disease, Ophthalmology · Regeneron
Director Patient Advocacy - Hematology, Oncology, Gene Therapy (CRISPR) Rare Disease, Ophthalmology at Regeneron since 2021, where the profile says this person leads patient advocacy strategies across ophthalmology, hematology oncology and gene therapy. Former Director Advocacy and Strategic Alliances - Ophthalmology Respiratory at Novartis (2019–2021) and Manager Patient Advocacy at Novartis (2014–2016).
Choose the right perspective
Match the person's disease areas and company stage to yours, since advocacy work for a single rare disease differs from covering several therapeutic areas at a large drug company. Also decide whether you need help setting up the function, planning advocacy around a launch or working with groups during development, and ask which of these the person has led.
Questions to take into the conversation
- 01How do you choose which patient advocacy organizations to partner with, and how do you keep those relationships compliant?
- 02How do you bring input from patient communities into clinical development and launch planning?
- 03Where should patient advocacy report inside a drug company, and how does that change what the team can do?
Reaching patient advocacy relations experts
How can I contact one of these patient advocacy relations experts?
Pick one of the 10 people on this page and choose "Book a paid call", or describe your project to find others. You offer a fee for a 15-minute call or a written answer, Instant Expert finds the person's work email and sends the invitation, and they decide whether to accept. The list covers 8 companies, including Regeneron, Genentech and Syndax Pharmaceuticals, based on profile data retrieved on October 4, 2026. Being listed here doesn't mean someone has agreed to take calls.
How much does it cost to reach patient advocacy relations experts?
You choose the offer, starting at $5 per person. It includes Instant Expert's 20% fee, so an offer that pays the person $100 costs you $125. You're charged only when the person books the call or sends the answer.
What if they don't reply?
You pay nothing. Instant Expert sends follow-up reminders, and if the person hasn't booked or answered within 7 days, the request expires and any hold on your card is released. You can invite several of the 10 people on this list at once and cap your total spend, so you pay only for the ones who accept.
About this directory
This is a professional research starting point based on business profile data retrieved on . Titles and companies reflect that source snapshot and may describe past or present roles. Check the linked profiles for current details. Inclusion does not imply Instant Expert membership or availability.
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